Rob's blog

MRI appointment

Woke up at 7:45 for the MRI appointment. What a dumb time to wake up especially feeling like this!

Turns out that the MRI wasn't an MRI after all but just a consultation with the neurologist. "Strange" is the NHS system especially when they phone you a week before to say that there has been an MRI cancellation and "would you like to take it".

The consultant was really good. Absolutely thorough in his diagnosis, listened intently and prompted for details that were not even questioned by the GP or the ENT SHO.

Hospital again

Woke up feeling drunk as usual but still no sickness or pain so it seems as though that's finally over. The Germolene has worked miracles and most of the lesions on my ear have healed quite well. There has been little in the way of itching too.

Just unstable today

Just unstable today. No sickness even though the cyclizine should have completely left my system so there's another milestone. I didn't get any breakfast till 11am so I suppose the acid-hunger-sickness cycle may be breaking.

I've managed to do some work on a couple of websites today although the right eye is still a bit of a problem. I still can't close it so it dries and gets quite strained.

Went outside in the dark and wow...

Feeling a lot better today. No sickness really but I have taken a cyclizine just in case especially as the acid is the root of all evil.

Actually the acid has dropped considerably today so I have tried some Vimto cordial with the bottled water. This has gone down well but I have taken a second cyclizine to be safe. Even though this tablet is supposed to help with the dizziness as well I have noticed that my drunken stupor is still there. Strange. So I am stumbling around, with my arms out for balance and more importantly to save me if I fall!

Back to the hospital

Woke up today with the usual dizziness and I'm feeling quite acidy. A quick bowl of Congee has done the trick and a glass of water. It's strange that I am still feeling acidy after food and water but I suppose it will just be time before that goes. For now it's back to the Polo mints. Speaking of which, do you know that sugar free mints have a mild laxative effect? Hehehe. Good to counter the steroidal blockage!

Mum and sis coming to see me!

Woken up early and feel very dizzy and sick. I must eat immediately or else I will be sick so there's a store of ready cooked rice and peas ready to heat up in 2 mins in the microwave. Even trying to get down the stairs is a nightmare as I feel completely drunk and dizzy all the time.

Cyclizene is helping

Symptoms are about the same but the extreme nausea has been stemmed a little by taking the Cyclizene early in the morning.

I still feel very sick and dizzy all day but I have not actually been sick. The pains in my head have pretty much gone now which I think is genuinely true because I'm not taking any painkillers at all.

The only way I can stop the acidity and sickness is by eating biscuits as a snack and rice as a basic starchy meal. I'm drinking bottled water but even this is making me acidy.

No ear pain but I'm deaf now!

Feel quite bad again today, really dizzy, and i have been sick 5 times. My ear is about the same today but the ear ache has gone. I've got Tinnitus quite badly now and am almost completely deaf in the right ear. The sores are giving me quite a bit of pain too.

Called the Doctors again at 20.15 to see if they could do anything about the sickness e.g. another intra muscular injection. She called around to administer the jab because there really is no way I can move about today. This is serious stuff now and it's getting me down.

32 tablets a day!

Went to Hospital to see the ENT Consultant at 9am. She's confirmed the diagnosis of Ramsay Hunt Syndrome and again wants to admit me. Nah. I refuse but request that I have the necessary medication to take home. Basically I have worked out that my 4 walls, comfort and lack of noise at home are the most soothing. Every time I see faces, hear voices, see bright lights, have to deal with movement or cope with varying distances I feel much much worse. So a bright hospital full of moaning sick people jumping about. Nah.

Feeling worse, dizzy and sick

Woke up feeling worse. Again I feel really dizzy and I have been sick several times.

All I can do is sleep today. I'm not eating at all. Just sleeping non-stop. Whenever I open my eyes I feel sick. I can feel so much acid building up that I can't do anything but concentrate on keeping it down. Sod it. Been sick a few more times but no relief at all.

There's no way I can cope with this so I've called the emergency doctor again. She suggests that I have an injection for the sickness and says that the visiting doctor will phone back.

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