bmichel's blog

My experience with Ramsay Hunt goes back to 1992. As you read my diary you will see that knowledge of this affliction was limited even among doctors. No doubt earlier specific treatment would have limited the damage. And, of course, there was no world-wide support like this excellent site.

I would judge my experience with RHS as not being nearly as severe as some noted on this site. For all practical purposes, I recovered after two years. I am physically active and still working at 65. Any physical limitations are due to other issues and just plain getting older. The message for those discouraged during the early days of the course of the disease is that recovery is possible. I still have some residual paralysis and problems, but they are liveable.

Most notable about my experience were: the onset had nothing to do with any stress; I had very little pain directly from RHS but severe eye pain due to a related viral infection; early misdiagnosis as simply Bell's Palsy and not RHS; and full recovery of balance and hearing.

The one impact of this disease was it stopped any political ambitions. I soon discovered that I could no longer "talk out of both sides of my mouth at the same time".

The support of my family was most important to my recovery. I thank them all but especially, Dagmar, my wife of 41 years.

Day 4072

From 18th of December 1992 to now my memory and records get more fuzzy. I went back to work after the first of the year and gradually got back to a full load. My eye problem cleared up with no lasting damage. Vertigo went away. My speech was somewhat slurred and I often had to prod food that got too far over on the right cheek back as the muscles were too slack.

I had very little pain except for the eye problem.

Day 30

Another EMG and nerve conduction test. Essentially zero nerve function.

Day 26

Follow-up with ENT. Happy with progress and pleased that my ophthalmologist knew what Ramsay Hunt was. Said the nerve would come back at one mm a day. But that is from the brain stem.

Day 23

Ophthalmologist follow-up and continue taking Zovirax for a total of ten days.

Day 21

Ophthalmologist follow-up and continue taking Zovirax for a total of ten days.

Day 20

Back to the ophthalmologist. She diagnosed my eye problem as due to a viral infection and started me on Zovirax (acyclovir) 800 mg, five per day. For the first time I heard the designation of Ramsay Hunt for my facial nerve problem. Apparently, some of the viral particles that were shed got into my eye.

Day 19

Only got partial relief from the medications and went back to my GP. He referred me to a local ophthalmologist. She prescribed erythromycin ointment.

Went to a local hospital to get an EMG and nerve conduction test. Great fun getting needles stuck in the face and electrical jolts. Had a small amount of response to the impulses.

Day 17

Started to get severe and persistent pain in my right eye. We had gone out and by the time we got home only the local emergency clinic was open. Diagnosed as conjunctivitis and corneal abrasion. Got gentamycin sulfate eye drops and bacitracin eye ointment.

Day 16

Worked half days. Eyes bothered me. My eyes were very light sensitive. If it was sunny, I wore two pairs of sunglasses while driving. Reminded me of the film Airplane where Robert Stack also wore two pair, to comic effect.

Day 13

This was my first MRI, but luckily I am not claustrophobic. Actually had two since one was with an intravenous contrast agent. Came back to his office for the neurological tests – a balance test and brain stem (evoked potential?).