liz hawker's blog

Why write a diary? I’ve never kept a diary before & didn’t intend to start one. But nine weeks into recovering from Ramsay Hunt & I was amazed how reassuring it was to read Rob’s diary.

I was going through a low patch at the time & thought that maybe writing a diary of my own would be a good project to work on. Since starting my own account I am amazed at how much more honest I am with myself. For instance it has enabled me to reflect on my progress, my emotions, the symptoms & some of my fears too. It has enabled me to be more positive about my recovery & I hope my account will help others ….even if just sends them to sleep – the rest will do them the world of good!!.

I am an active 29 year old & have always played sports & enjoyed outdoor activities. My diet is relatively healthy. I have a demanding job working in a primary school with 25 seven to eight year olds. I love my job but do find it stressful at times & the hours can be very long.

I have always been healthy but unfortunately had to have major surgery less than two years ago. I seemed to recover well at first but returned to work quite hastily & I think I am suffering the consequences now.

Ramsay Hunt Syndrome came so out of the blue back in February of this year (2003).

I have learned one thing from this illness, & that is that the body is not invincible & cannot & will not be pushed beyond its limit. When your body says it’s had enough, it sometimes has to take drastic action to get through to the ever active mind.

This time I want to make a full recovery. This time I’m going to do it properly.

Day 942

Well, 2 years & 7 months later & I feel so much stronger!

Day 581

Well it appears that I am finally returning to the energetic person I was. There are definitely signs of my old self coming back. As the weeks pass, even though it is 18 months since I had RHS I can still see changes & improvements not only in my face but also in my physical ability. I am able to do more exercise but just have to be sensible about it & try listen to my body & ensure I rest afterwards. It is particularly important to rest after a hard day at work.

Day 489

Well here we are, 16 months down the line. Well actually I am feeling much better. Yes I still get very tired some days after work, particularly towards the end of term. On the whole I think I am stronger physically, which means I am able to at least try doing activities I used to do. However I’m quite a way from having the energy I did have. I went to a water sports centre last weekend & although I was completely exhausted afterwards, it was really uplifting to do something sporty as I’ve really missed all that.

Day 384

It is now over 12 months ago that I first had RHS. I have made significant progress since those first few weeks but it really has been incredibly slow. Being back at work has really taken its toll and I am still a long way from feeling my normal self. I go through phases of feeling very positive but frequently very frustrated & tired. However I know I will get there in the end!

Recently I have realised that I need to make some important decisions in order to improve my rate of recovery.

Day 360

It took a while to get back into the swing of things after the Oct. half term with a lot of extras on at school plus I was starting to put pressure on myself. I was very tired to begin with but the second week back was a big improvement. I was not feeling so desperately tired at the end of the day. No “groggy head” or “jelly legs” for a while now. Great! What I have noticed more towards the end of term and now during the holidays is just how much my muscles ache after a walk. The aching doesn’t just disappear after a rest either.

Day 218 to 238

Although still very tired some days after work, other days have been much better and I have coped well. I don’t seem to collapse in a heap quite so much after work. Am going to bed about 9-9:30pm most nights with only the occasional early night, which is better than the last few weeks when I frequently went to bed at 8pm.

Day 197 to 217

The last 3 weeks has been very long indeed! I have been finding school extremely tiring both mentally & physically. My legs feel like jelly most days and I still have to wait until the weekends to cope with a walk. So much for thinking I’d be back at the gym (possibly at the weekends.) No chance!

After school, some days my head feels like a lead weight, my legs are all over the place and I just need to get home and lie down for an hour, in order to feel relatively normal.

Day 183 to 196

I have finally returned to work and it is really good to be back! I am finding it very tiring at times and have forgotten how draining children can be. As for my colleagues... well? (Just kidding!!)

Day 127 to 161

I seem to have turned a corner & genuinely feel on top of the world at the moment. The tiredness no longer seems to be running my life. The last few weeks has seen a big improvement not only in my facial movement but also in energy levels. I am feeling more like my old self & boy does it feel good! Da-na na-na na-na!! …Uh oh!

Being back at work will be the real test! But I am looking forward to it with only a slight apprehension.

Day 120 to 126

Have still felt extremely tired at times early on in the week. I think the emotions from the previous week & the long drive back caught up with me. Head has felt muzzy & groggy when I’m over doing it! I can’t seem to shake of the weariness, whether I rest or whether I try to be more active either way. But it’s not all doom & gloom read on!