I am hating the face pain. I cannot take Neurontin or Lyrica. The neurologist hasn't given me anything else. My Primary Care Physician says the Neurologist is responsible for treating me regarding these problems related to RHS. When I talk to my Neurologist he says that's not RHS and tells me to see my PCP. I am so frustrated. It's like no one cares. Okay, so, I'm having my little pity party. Friday the nurse and I got in to it on the phone. She apologized. Today, they called after hours and left a message that they wanted to see me at the Neurologist Wednesday morning. This should be interesting. I don't expect much from it other than, another that's not RHS. I wanted a witness to go with me, but my daughter and husband both have to work. I'll talk to him and see what he says.

When I called the neurologist on Friday it was because I had sores on the roof of my mouth since Wednesday evening. I also feel a lump in my left cheek. This is where most of the spasms are happening. I thought it was muscle but now I suspect it is a gland.

I saw the ENT for the ear pain and he pulled a scab out of one ear.

I saw the opthamologist and my vision is much worse. The left eye can no longer be corrected with eyeglasses. The cataracts are growing. He did OCT pictures of the macular suspecting Macular Degeneration. I have macular pigmentation changes over the past two years and it is progressively worse.

I slept 12 hours last night. :( I felt pretty good all day until after dinner and I had an overwhelming fatigue hit me. It has eased off a little bit since I laid down a few hours watching television.

Another thing is I suspect I have Sjogren's Syndrome. My eye doctor noted the dryness of my eye. All my mucus membrances are dry. Anything that is supposed to be wet is dry. I have to keep extra eye drops and gel at night.